Oklymphoma Blues
November 3rd, 2010
It was right before the Mayor’s Blues Ball when we found out that Michael had Non Hodgkin’s Lymphoma. We did not know the extent as all the tests weren’t back yet. We (the family) went into factoid overdrive as we tried to learn as much as we could about this cancer. We did everything but cry. No tears. It was time to get ready for what was to come next. My husband, Michael, had just gone through his biopsy and had a large slash on the side of his neck with the still visible stitches. But we had VIP status at the Ball because Michael had donated his graphic work in the studio to the Blues Ball. We went knowing there would be questions. We had already told family and some close friends in the Park but we knew that a whole slew of Medicine Park folks would be out enjoying the event. And so it happened that it was also Michael’s Lymphoma coming out news.
I was still shaky. It had been a whirlwind week of lab tests and biopsy with appointments nearly every day. We didn’t want to distress anyone but we also wanted to still be part of the community. Secrets are not what our little community is about. Between sets we told folks. My friends wanted me to get up and dance but I wasn’t ready yet on the first night. I was more somber than usual and was fine until a friend thought I needed a hug and then I cried a little. And when on the last night Janiva Magness sang “Save Me” I broke up again.
The months have passed and chemo has begun. The Southwest Oklahoma Cancer Treatment Center is a gift that funding drives like Spirit of Survival has help to build. And yes, we donated our time and our art to this drive for several years never even considering that we would have to use the facility. Everyone who has been through cancer treatment told us that it was of utmost importance that we trust and connect to the *treatment team. Our team led by Dr. Nimeh and the clinical research nurse Suzy McCoy has been the top. Michael’s examination room was donated by Arvest Bank, the president of which, David Madigan we consider a friend.
And as far as the town is concerned we are surrounded with sincere prayers and offers of help if and when we need it. So far we have needed some rides to and from appointments and a few grocery pick-ups. One cannot help but to love Medicine Park folks. This is not to dismiss the abundance of well wishes from family and friends living a distance away who still find ways of helping by prayers and deeds. And how could we have faced it without our adult children who have flown in to stand by their Dad and help us through the maze of information and finding financial assistance.
Michael is one of only 50 in he US in the clinical trial known as LYM 66 which combines 3 chemo drugs, Rituxan, Bendamustine and Bortezomib, for the first time in the treament of newly diagnosed Non Hodgkin’s Lymphoma. We are doing it for Michael but also in hopes of a cure. The picture is of Michael on the Thursday before Halloween as he climbs in his chair dressed in his Marauder shirt and hat ready to face down chemo. We have six months to get through this and we are making the best of it. Lymphoma’s color is lime green which is the color of our bracelets that read “Say it, Fight it, Cure it”
*Note: Recently we’ve gotten to know a few more names of the team including Monica our chemo nurse who is so attentive at her job and has the most pleasant way of explaining what is happening and Kelly in finance.




